Tuesday, February 23, 2016

Life continues....

Megan is on a regiment of swallowed Pulmicort to hopefully put into remission her EoE. She will be scoped again in a couple of months to see if her esophagus and stomach look better. That scope will determine which road we will be taking. If her EoE is under control then we are good to go but if her EoE is not better Megan will loose egg. Megan went through Egg Desensitization too. Egg could be contributing to her EoE but at this time we do not know if it is. We have also been told that there is a chance that DIARY may need to be taken out as well. I am really praying that is not the case. Megan already has many dietary limitations due to Celiac Disease and a handful of other food allergies.

Monday, February 1, 2016

Not a good ending.......

Megan has been diagnosed with EoE. She has been dealing with severe GI issues for some time now and last week a scope revealed damage to her esophagus and stomach due to EoE. Biopsy results confirmed EoE. After graduating from peanut desensitization, Megan began having issues with maintaining proper maintenance dosage of daily peanut. Over the years we have had to continually decrease the amount of peanut until we were at 1/2 of a peanut for daily dosing. Maintenance is 8 peanuts. As of today Megan will stop peanut and unfortunately go back to her prior anaphylactic state. Megan has a great deal of anxiety. Life will change again. I will continue to update on how she progresses. At this time Dr. Wasserman is uncertain how long it will take for her body to revert back to her full anaphylactic state. Being that her peanut numbers are still quite high and she was only doing 1/2 of a peanut I am sure it will not be long. Time will tell............