Wednesday, August 10, 2016

Food Fear

Food is meant to nourish our bodies, bring us enjoyment, and is a HUGE part of our lives. When certain foods become potentially life threatening, sometimes anxiety, fear, and avoidance become a daily struggle. Megan remembers what it is like to go into anaphylactic shock! Now that this is her reality yet again, anxiety and fear have taken hold. With a handful of food allergies, from severe to anaphylactic, food can become a scary monster. Add in the mix a predisposition to anxiety already and you end up with a train wreck!! After her diagnosis with EoE which resulted in weight loss, nausea, vomiting, and often feeling sick after eating, the problem intensified. Megan is now getting help through several medications as well as weekly therapy to help her cope and deal with her health conditions. I am extremely grateful for a wonderful therapist who is patient, understanding, and knowledgable about the daily struggles that Megan faces. As a mom I cannot change or take away the health problems but I intend to support, empower, and give Megan the tools she needs to fight.




Tuesday, February 23, 2016

Life continues....

Megan is on a regiment of swallowed Pulmicort to hopefully put into remission her EoE. She will be scoped again in a couple of months to see if her esophagus and stomach look better. That scope will determine which road we will be taking. If her EoE is under control then we are good to go but if her EoE is not better Megan will loose egg. Megan went through Egg Desensitization too. Egg could be contributing to her EoE but at this time we do not know if it is. We have also been told that there is a chance that DIARY may need to be taken out as well. I am really praying that is not the case. Megan already has many dietary limitations due to Celiac Disease and a handful of other food allergies.

Monday, February 1, 2016

Not a good ending.......

Megan has been diagnosed with EoE. She has been dealing with severe GI issues for some time now and last week a scope revealed damage to her esophagus and stomach due to EoE. Biopsy results confirmed EoE. After graduating from peanut desensitization, Megan began having issues with maintaining proper maintenance dosage of daily peanut. Over the years we have had to continually decrease the amount of peanut until we were at 1/2 of a peanut for daily dosing. Maintenance is 8 peanuts. As of today Megan will stop peanut and unfortunately go back to her prior anaphylactic state. Megan has a great deal of anxiety. Life will change again. I will continue to update on how she progresses. At this time Dr. Wasserman is uncertain how long it will take for her body to revert back to her full anaphylactic state. Being that her peanut numbers are still quite high and she was only doing 1/2 of a peanut I am sure it will not be long. Time will tell............